Passion

     I have been going to the gym faithfully but instead of getting stronger I was getting weaker. I can only do the recumbent bike now, but that too is proving to be too difficult for me. Every revolution causes jerkiness, it is not smooth at all and when the opposite leg is at rest it ”tremors”. This will no doubt be the last time I will be at the gym in over 26 years.  Until I was diagnosed with MSA I had a home gym with a treadmill, a spinner, an elliptical, balls, jump rope, and was a marathoner. I used all this equipment not as clothes rack but to get in good shape. That is why this MSA diagnosis makes no sense; I was an athlete who watched what I put in my body. I feel I am being punished, not for doing anything wrong but for doing everything right!

 

     I was also having serious trouble with my bladder and bowel. I thought considering I had taken care of all that business in the morning it would be nice to go for a drive to Gatineau Park. So off we go, we just get at the entrance and I had to visit the bathroom. The closest place was the Casino du Lac Leamy, so this is where we stopped. When we got to the bathroom there was only the ladies bathroom with the handicap stall. So I had to pushed my chair like it was a walker. Using it like this means there are no brakes where I can reach so if the chair goes fast I cannot stop it. When I get to the stall I am very shaky and my whole body is trembling.  I felt so alone, and like crying. I was trying not to fall, get myself on the seat all while the tremors took over my body.  This is another symptom of MSA. I manage okay but afterward I just want to go home and rest. It is amazing how exhausting this is.

     Thankfully we have something good to look forward to, at least I hope. Hunny got us tickets to see Michael Jackson, The Immortal WorldTour Cirque du Soleil.

We bought these tickets a few months ago in the handicap section.  This will be another experience for me, but we cannot stay home because of this because there are going to be a lot of new experiences we will have to adjust.

     When we drove to the  Scotiabank Place, where the event was being held. They not only had a privileged parking spot but they had a privileged parking lot. We were off to a good start! We went to find our seat, to our delighted surprise, they have a whole section for privileged seating.  I had lots of room for my wheel chair, for Hunny to stretch and we did to have to worry about bothering people in front of us.

  

     The show was great all the music we grew up with. The King of Pop's extraordinary career with the artistry and acrobatics was amazing to see.  This extravagant performance was full of respect and love; it was obvious that everyone involved tried to show their love for Michael Jackson. The research that went into this production was evident by the way MJ's passions and interests were displayed in the show.

I too have a passion, it is for a cure for MSA!