This week I am calling my entry the LAST, because it will be my last
time I will be traveling by myself, the last time I will be walking by myself, my
last time partying with family and the last week of Winter Camp, but most
importantly the last time I will be spending time with family by myself. The next time I come home, I will have someone helping me and will have to stay at a hotel where they have handicap
accessibly. I won’t be able to visit if
I have to get up the stairs to get in the house. Of course, I do not expect
anyone to think that far ahead, but I do. The next time I am here, no doubt it
will be in a wheel chair as the MSA progresses.
We all got together for a night of singing and dancing, It
was such a good time and listening to all that talent was a hoot!
Last week of
Winter Camp, and so much to do and so many people to see! I was at base camp for
the day and the fifth oldest sister was picking me up to stay with her a few
days. That night my brother had wing
night, so myself and two of my sister’s went to support our
brother. We had a few laughs and good wings.
The next day, we took a drive to North
Sydney. Can you believe I lived here for 22 years and did not explore or
appreciate this area? The scenery was beautiful; the way the cliff met the
water was magnificent. I was too busy growing up that I left without exploring
the whole island. On the way home, we stopped and surprised my friend at Kay’s
Kozy Korner. We had breakfast (which was excellent) and set up a day to come
for a visit.
I guess I caught a flu because I could not get warm. I know
with MSA the body temperature is not the same but this is crazy. In the summer, I do not sweat so my chances of over heating are greater but this is winter. I had on fleecy
PJ’s and fleecy socks, and two fleecy blankets on me while I sat beside the fireplace before I got
warm. I stayed here until this bug passed but that meant that I missed seeing
another dear friend of mine. Oh, how I wish I could drive or get in and out of
the car by myself. Those days are long gone.
The next day, I went back to base camp. That evening, I went to
the baby sister's to beat her at crib again. One of my nieces came to visit me.
It was so nice of her to come. This niece use to cry after me when she was a
baby, now she is grown with a baby of her own.
Today is my daughter’s birthday, the first time I missed it
in 22 years. We will have to plan something when I get back.
My sister whose house is where base camp was, took me to see her friend and I went in the 4x4. We drove all along the shore and down to Low Point Lighthouse. My friend’s father was the lighthouse keeper when we were kids, her house was my second home. I took lots of pictures it was nice to see how things changed. One of by brother’s lives near there, so we made a pit stop. Another thing the MSA affects is your bladder. Of course, my brother wasn't expecting us so when we drove in he was wondering who that could be. But when I took off the helmet he was surprised to see me, well I did resemble Kazoo with the helmet on. I told him I had to share it with him. We would be back later to share my niece’s 16th birthday! Another thing to be thankful for.
My sister hosting the sleep over ate and then fell asleep. We
bugged her after that it while it was a sleep over, we did not know that meant we would be watching
her sleep.
The next day was a day of rest and packing. Everyone came to say good bye until next time!
Brenda, I am sorry about the MSA changes but am always inspired by your spirit and joy in life's beauty, friends and your family.
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