Time to come home to my Hunny and beautiful kids. I was nervous about the flight, not nervous
about the flying, because really what is the worse that could happen…crash? Oh,well. That is one good thing about MSA, it sure puts things into perspective. I
was having issues with my bladder and thought I might have to postpone the trip;
this is one of many symptoms of MSA, bladder difficulties. This is something we
find embarrassing or shameful, when the people who make us feel this way
should be the one's embarrassed or ashamed for not being understanding. We are not doing this on purpose, we have no
control. Did you ever notice when you go to bathroom there is usually a
handicap bathroom but how do you get the main door opened is always
challenging?
Air Canada shipped my walker right through to Ottawa.
They brought me to the gate in a wheel chair and parked me at the gate.
Normally, this would not be an issue but they left me sitting in the chair with
a delayed flight of 1.5 hours. I ended up having to use the wheel chair as a
walker. Do you realize how cumbersome wheel chairs are? And there are no brakes.
Everyone was watching me, but no one offered help either, afraid they might
catch what I had. At least I was live entertainment for the people.
I got the connecting flight to Ottawa. I almost had a
choking episode, so I did not eat or drink until I got home. The trip proved
one thing; it will be my last time to travel alone! Hunny met me at the
airport. I came home to a bouquet of
flowers, shrimp, cheese and crackers and oh yes, red wine. All my favorites! We
sat and just talked and talked. 
I went to see Dr. Grimes, a.k.a "He Who Shall Not be Named",
because he is one who gave me the bad news about the MSA. He had me do the
typical tests but I was having trouble with the left. He had me clapping,
tapping my foot, opening and closing my hand and walking tests. There is no
test that confirms MSA, it has a lot of similarities to Parkinson, and a lot of people
are misdiagnosed. They usually rule out other diseases and see what they are
left with. They don’t know what causes it, therefore, they don’t know how to fix
it. So, I am going to fix myself. Dr.
Grimes gave medication for my bladder and something to help me sleep. I slept
through the night the first time in a few months, it is worse than having a new
baby in the house.
To think when I first started having symptoms I told my boss
at the time. When I told her I started crying because she knew something was
wrong. She said, “don’t be silly you’re the healthiest person I know”. Those
words keep playing over in my head.
Another symptom of MSA is voice loudness and lack of.
Not sure how many of you have sisters, but I have nine and we all want to be
heard. I find myself having to start conversations over because I am not loud
enough or I run out of air. I get tired so I told them they cannot keep making
me start over or I will give up and not speak. They also try to guess what you are going to
say they drown you out when doing this. I get tired especially now, so, one time
I said to my oldest sister,“ Is that your final
answer or would you like to guess again”? We had and have a good laugh at this
expression all the time and she informed me that she uses this expression often now. What a great story!
I brought back t shirts for
everyone, which we all wore to celebrate our daughter’s 23rd. We had
a nice dinner followed with cake and gifts. We had a lot of catching up to do,
three weeks is a long time. I missed my Hunny and kids. There is no place like home!
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